| NAME: | Sue |
| COMMENT: | Brion & Greg, my heart cried for you both, being struck by the "beast", but
then my heart smiled for you both, seeing the eternal love your whole family shares. I
belong to the EC group, for my husband, Vince, who has EC. |
| NAME: | Marian |
| COMMENT: | My hear goes out to you and your family. My husband was diagnosed with
EC April 2000. Surgery Oct 2000. Stage III. Seems to be holding his own so far. Best
Wishes to you and yours. |
| NAME: | Dave in the Redneck Riviera |
| COMMENT: | Brion: I have been reading your posts on the listserv for the past 2 years. I
did not know you had a website until today, 19 June. It is very informative. Keep the
faith. |
| NAME: | Cheryl |
| COMMENT: | May God bless you and your family. I know you are all going through a very
bad time right now. My Dad was diagnosed with EC Nov. 2000, stage III, he currently is
recovering from the chemo and rad. I know each day that he is here and we are here is a
gift, |
| NAME: | Mary Larsen
|
| COMMENT: | My husband was diagnosed with esopageal adenocarcinoma Oct 1999 at
the stomach esoph juncture; had a complete removal of his esoph. and stomach pull up.
Currently doing well |
| NAME: | Tina (Goldi) |
| COMMENT: | ((((((Brion and Family)))))), Your family is always in my thoughts and
prayers. How loving to think of providing others with information about this "tool of Satan"
for stealing the gift of life. Thanks to our creator, it is not something Satan can take |
| NAME: | Rick |
| COMMENT: | My prayers are with you and your family. See you in the presence of our
Lord Jesus Christ. *Rick* |
| NAME: | David |
| COMMENT: | It is good to see your pictures after reading your postings. I have EC too,
but I have already seen 71 years. |
| NAME: | julie rindt |
| COMMENT: | That was so nice of you to add me to your web site. I wish I could have
made it out to your house with Leann. We are going to try to plan another time, I hope
that's OK with you guys. We'll keep in touch. My prayers are with you all. |
| NAME: | Peggy |
| COMMENT: | I think about all of you everyday and keep you in my daily prayers. All of us
in Wichita love you!
|
| NAME: | LaVonda Cash |
| COMMENT: | You are in my prayers, ALL of you.... I work with Germaine Hall at KU Med |
| NAME: | Karen Mickleson |
| COMMENT: | Dear Brion, I am very moved by your website, and of course, your family's
amazing story. One thing which really rang a bell was how overuse of ibupropen fit into the
picture...I was a person who ate Excedrin like candy to keep myself awake or "perky".. |
| NAME: | xxx |
| COMMENT: | Brion, I'm a member of the EC group. Your story and your courage is an
inspiration to all of us. Though my husband lost his battle with EC this past May, we always
held your family in prayer and I continue to do that today. |
| NAME: | Carol |
| COMMENT: | I will pray for everyone who has cancer, including my dear Dad.... |
| NAME: | George & Ann |
| COMMENT: | This is a work of art, Brion - you tell your story so beautifully. Words fail
me.....you are always in our hearts and out prayers. What an example you are! Thank you. |
| NAME: | Evelyne |
| COMMENT: | My thoughts and prayers are with you all during this difficult time. May God give
you His peace as you trust in Him. Your sister in Christ, Evelyne G.
|
| NAME: | Sherry |
| COMMENT: | Brion,Nancy,and Family, May you be strengthened by the prayers and thoughts
of the many people you have touched and inspired. I am one of them. God Bless... |
| NAME: | Charleen |
| COMMENT: | I just wanted to add that the courage you and your family have, has struck me so
deeply I am at a loss for words. These are wonderful webpages. And what a wonderful
looking family. Charleen at mgh |
| NAME: | Renee |
| COMMENT: | What a good job. I want you to know that I tell everyone about you and how you
always find time to drop me a line. The pictures are just grand! Give my regards to your
family. Renee |
| NAME: | Presley |
| COMMENT: | Just thinking about you, friend. Pres |
| NAME: | Joe |
| COMMENT: | To brion, Greg & Especially Nancy, My wife has secondary cancer to the
bones (discovered today), so I know the pain. You are all so very brave and strong, I
wish I could be like you. My beloved is very sick, and I'm dying inside. My love to you
all. |
| NAME: | Gaye |
| COMMENT: | I am praying for you and your family daily. God bless you and give you
strength. |
| NAME: | Dented Angel/Lisa |
| COMMENT: | Dearest Brother Brion, You are a man of many talents! You have done an
excellent job in putting together a fitting tribute for your family. Your combined
unwavering strength and faith speak volumes. God bless you. Love, Lisa |
| NAME: | Nora Your "adopted" Sister |
| COMMENT: | Hi Brion & Nancy! Love your page :-) I would have NO idea even how to
start that! Praying for you all each and every day~~~~with MUCH LOVE!!!! Nora
|
| NAME: | Barbara |
| COMMENT: | Brion, My name is Barbara Schreiber & I am a 1 year EC survior. My
prayers & thoughts are with you & your family. |
| NAME: | Marilyn aka: Scoob @ Friends Forum |
| COMMENT: | Beautiful and well put together website. You should be proud! My
thoughts and prayers are will you and your family Brion and Nancy. |
| NAME: | Patricia |
| COMMENT: | May the Lord continue to give you the strength to carry this terrible load
which has been placed on your entire family. Praying for you all in your hour of need
|
| NAME: | Nancy |
| COMMENT: | Thank you so much for including all of us in your life's journey. My
love and best wishes to you and your family. -- Nancy in Iowa |
| NAME: | ken |
| COMMENT: | im clouds. hi .i hope youre feeling a measure of peace and happiness
today |
| NAME: | Cheryl - Battmom @ Friends Forum |
| COMMENT: | This is absolutely wonderful! My continued prayers and love to you and
Nancy and your beautiful family!
|
| NAME: | Julie |
| COMMENT: | Great job Brion. I'm sure this will be a great help to many families who
are dealing with cancer. We'll continue praying for strength and comfort.
|
| NAME: | Pamela |
| COMMENT: | God Bless your family.
|
| NAME: | Sonja |
| COMMENT: | I am so thankful for the little blessings I daily overlook. Thank you for
letting us into your lives. May God wrap his loving arms around you all, and bring relief
for the pain, strength for the trials, and peace for each moment. |
| NAME: | Jan |
| COMMENT: | Dearest Brion and Family, These pages are so beautiful. You can feel
the Love you have for each other. May God Be With You, Greag and your Family.
thereishope2, |
| NAME: | JIM |
| COMMENT: | Thankyou for sharing your journey |
| NAME: | Terry/MaryT |
| COMMENT: | Beautiful website, Brion! As always, praying hard for all of you. |
| NAME: | Kay |
| COMMENT: | My prayers are with you daily. I am sending you love and strength. May
God be with you each day and wrap His loving arms around you. |
| NAME: | Gina |
| COMMENT: | I think of all of you everyday. As always, I am in awe of your strength and
grace in coping with such a difficult cross to carry. |
| NAME: | MessyBessie (Mary) |
| COMMENT: | Just wanted you to know that I was here Brion. I really didn't know how
to respond to your most recent post on the forum (child nuerology) regarding these
end times for Greg and you. I know that you and your son will be in Heaven together. |
| NAME: | Judy (in Iceland) |
| COMMENT: | Dear Brion and Greg, My heart goes out to you. I know what it is like to
lose someone from esophageal cancer. You are both very brave. I hope that with your
faith you can find some comfort. May you find some happiness in your remaining
days. Judy |
| NAME: | Joy |
| COMMENT: | One can really see the love and togetherness in your family. God bless
you. |
| NAME: | Barbara |
| COMMENT: | our thoughts and prayers go out to you and yours. Sincerely, Barbara
Themo (wife of Steve..dx EC 8/00 T3N2..
|
| NAME: | Eirit |
| COMMENT: | My thoughts are with you and your family. Your posts in the EC digest
are inspirational. Your strength is unbelievalbe. A wonderful article and great web
site. |
| NAME: | Kristen |
| COMMENT: | I had to zoom over to check this out again. Thought I'd signed in before,
but I guess not. You know I'm always thinking of ya cuz I'm always mailing ya : ) peace!
your other adopted sister. |
| NAME: | Phil |
| COMMENT: | Brion & Greg - I am checking the Web site for information to use in the Lap I am
walking for each of you at the Relay For Life at Cal State Fullerton on June 22nd & 23rd.
Will give you more details later. I am praying for God's strength for you and Nancy. |
| NAME: | Mike Clark |
| COMMENT: | God Bless you in His Own Way. |
| NAME: | Brenton |
| COMMENT: | God be with you and your family. There is nothing more I can say. |
| NAME: | Terri Chayko |
| COMMENT: | husband and I send love and prayers to you, Brion and to Greg,
Nancy, and the rest of your family. Through EC we are also members of your family.
My husband is walking the walk and talking the talk. We only hope that we can attain
the wisdom you all have. |
| NAME: | Bob(NJ) |
| COMMENT: | have been through a lot, but nothing compared to what you and your
family have been through. God keep you in the shadow of His wing. |
| NAME: | Sue |
| COMMENT: | I just wanted to say I was so moved by your story of you and Greg.
I'm so sorry for all of this. All I can say is Nancy must be one heck of a woman.
God Speed, Sue |
| NAME: | Steven |
| COMMENT: | an EC survivor almost 6 years stage 3 (read my story in cathys cafe under
Karens Story) my thoughts and prayers are with you and your family |
| NAME: | Jay |
| COMMENT: | husband Charlie has Ec and is not doing well,your story is so heartfull
and so much love. Thank you for share it was us. May the Good Lord Bless your hold family. |
| NAME: | Marie |
| COMMENT: | be with you and your family !!! My husband was diagnosed with leukemia
in September 2000 and then in December, surgery was planned for suspected achalasia
however EC tumor was discovered. It was removed two days after Christmas. |
| NAME: | Vera |
| COMMENT: | You are an inspiration to all of us. God Bless you, Greg, Nancy and the
entire family. Fellow Pumpster- Vera
|
| NAME: | Blanche |
| COMMENT: | Nancy, Greg, and the other children, I pray for you day and night. You are
always on my mind.I know that someday we will all be together again in a wonderful place
without out cares and pain. I love all of you so much. Brion's Mom |
| NAME: | Mickey from PA |
| COMMENT: | of the most courageous things I have ever been privelaged to
read.
God's blessings to you and yours. |
| NAME: | Bev |
| COMMENT: | just wanted you to know you are all in my prayers daily.
You have
touched my life tremendously. |
| NAME: | Roberta |
| COMMENT: | website is awesome! You eloquently describe the horrors of
this Beast called Esophageal cancer and how the battle is fought. My prayers are that God grant
you both peace and gives Strength to you to face each day. Roberta in Iowa. |
| NAME: | Celeste |
| COMMENT: | Your experiences have touched my heart. I pray that God will
heal you both. |
| NAME: | Malin from Sweden |
| COMMENT: | You have a wonderful homepage. You are always in our prayers.
Love Malin |
| NAME: | Mary R. |
| COMMENT: | Brion, Nancy and Family ... Thank you for creating this website.
You are a remarkable (and VERY good-looking) family, and your love, courage
and togetherness will get you through. Thank you, too, for sharing your journey with us all. |
| NAME: | "PJ" |
| COMMENT: | We are part of your internet EC list family. You are in our
hearts and prayers |
| NAME: | Hillary |
| COMMENT: | Brion. I'm Tex from the chronic pain forum. You've done a
great job with your
web page. God bless you, Tex |
| NAME: | pauline |
| COMMENT: | your pages have been a great help to me. my husband was
diagnosed in July 2001 with esophageal adenocarcinoma, (at the GE junction) |
| NAME: | Mil |
| COMMENT: | I have no words but my heart sends love. |
| NAME: | Susan |
| COMMENT: | Brion and Nancy, Your lives have touched my soul and my
heart goes out to you as you struggle with this incredible ordeal. Through your love and faith you have
inspired many, you are truly embraced with goodness and love. |
| NAME: | kim |
| COMMENT: | my heart is broken for you,going through some similar things
with my husband and hope im as strong as your wife.bless your family and thanks for sharing a wonderful
website |
| NAME: | Melanie |
| COMMENT: | My family has also been run over by the cancer steamroller.
My grandma, my great-grandpa, my uncle, my grandpa, and most recently, my mom--have all passed away from
that hideous disease. My mom just passed away in August 2001. |
| NAME: | Brooke |
| COMMENT: | I love your friendship that you have both shared with be Brion
and Nancy. God Bless your family and take care ! |
| NAME: | Marilyn |
| COMMENT: | Brion and Nancy, I once again came here to read your site and
look at the pictures of you, your beautiful family, and your pipe organs. I am praying for you to have peace,
for the pain to be controlled, and for you to have the strength you need, Nancy, too. |
| NAME: | Susan |
| COMMENT: | Its taken me two selfish weeks to read your whole site. I am so consumed
with self pity over my chronic pain. I have book marked your site and it will be my daily reminder of how giving you
and your wife are by sharing your story no matter how painful. |
| NAME: | Perry |
| COMMENT: | great job on the site, keep up the good work. you are an inspiration to
many. Peace and love to ya' :) |
| NAME: | Marlene |
| COMMENT: | You did a great job on your new website. I am very impressed. Good
luck with your new business venture.
Email:
|
| NAME: | Pamela |
| COMMENT: | Brion, What a loving tribute to Greg. He was so handsome and I
love how people called him the gentle giant. I remember how you posted on the spinal board how Greg loved the
band creed, and I think of him when I hear them on the radio. |
| NAME: | Karin |
| COMMENT: | Awesome Job Brion...You should be real proud of your work...I
know Greg would be saying "way to go dad!" |
| NAME: | Jenner from SD2@MGH |
| COMMENT: | Magnificent!! You have created an outstanding website, Brion. :)
May God bless you and your family. |
| NAME: | Mary |
| COMMENT: | I think that the Larson Family is the greatest! From keeping up
with all of you through the Massachusetts General Hospital "Braintalk" website, I have been privileged to
read about a family who truly exemplifies "Profiles in Courage". Thank you for sharing. |
| NAME: | Jack Wehr |
| COMMENT: | Hi Brion, My thoughts and prayers are always with you and your
family. Your website is a awesome tribute to Greg, and a inspiration to all suffering with this horrible disease.
Soon, we will all be together in a much better place. In his love. Jack |
| NAME: | Lois |
| COMMENT: | Read your site from start to finish. Thank you so much for sharing.
Hugs to you all. |
| NAME: | stubbornangel |
| COMMENT: | Hi Brion. I thank you for allowing me to view your webpage. I think
its great. You also put cancer into a new perspective. Just loosing my Grampa and a lot of family from the 'beast'.
You helped me understand what it could do. Your also in my prayers. |
| NAME: | Steve |
| COMMENT: | Brion, Best site I have seen yet. You really have great talent. Greg
would be proud, and you have much to be proud of. What a great family. AKA....Harley. |
| NAME: | Sara |
| COMMENT: | Brion ... I'm "abnormallyme" that you email with updates. I just
finished looking through the web site. You have done an awesome job! I was especially touched by reading the history
of your family's battle with cancer. As I've told you before, you and Nan |
| NAME: | Nora |
| COMMENT: | Brion, My "brother", what a WONDERFUL job you did on your website! I am
honored to be among those you find special in your life. I Love you and thank you for inspiring me with your friendship
and love...give my best to Nancy:-) |
| NAME: | Perry-O |
| COMMENT: | The music! Thank you for the organ music. Does you site tell us about the music, and I missed it? You have created a unique and information filled site. |
| NAME: | Mom Blanche |
| COMMENT: | I think your new sight is really great. Of course, since I'm your Mother, I think everything you do is great and I'm very proud to have you for my son. I've always wondered where such a brain as yours came from. I don't think you inherited it from me. |
| NAME: | Barb |
| COMMENT: | Hi Brion, You did a great job with the new family site. It's a good tribute to Greg and the strong friends and family he had around him. Hugs, Barb SIS & SurvivingPain |
| NAME: | Peggy |
| COMMENT: | I am Peggy Larson but I am not the cat. |
| NAME: | judy |
| COMMENT: | wishing and hoping for the best for you and yours and pray that you get a well deserved miracle.lots and lots of love to you and yours.judy |
| NAME: | MARY |
| COMMENT: | THANK YOU FOR SHARING YOUR LIFE,I HAVE BEEN ON THE TRIP WITH YOU WHEN GREG WAS ON THE EARTH,I HAVE ALL THE CONNECTIVE TISSUE DISEASE PLUS HAVING MY STOMACH TIED TO MY ESOPHAGUS,NOW MY STOMACH IS SWELLING SO HUGE AND HAVING PANCRETITUS THEY WILL BE CHECKIN |
| NAME: | Roger |
| COMMENT: | My total admiration goes to you and your family for your God Inspired article... Yu give hope to others............. Im also a 2 year survivor of Esophageal cancer I had THE surgery in Nov 99 so far ok my regards to you and your family Roger |
| NAME: | Beth |
| COMMENT: | I hope you understand - this website fills me with love as well as tears. I am reminded to meet every day and every one with love and gentleness, for my sake as well as theirs. Thank you. |
| NAME: | Misty Souder |
| COMMENT: | I miss Greg so much, he is in my thoughts daily. I love the fact that kelly and I have become friends and we look forward to the Creed concert, we both know that Greg will be there with us |
| NAME: | Judy |
| COMMENT: | This is a wonderful site - inspirational! I have stomach cancer, and had a total gastrectomy November 28, 2001. There is no chemo or radiation available for the type of cancer I have. My husband died in 1994 of a melanoma. |
| NAME: | TerriRN |
| COMMENT: | Brion, I have followed your story. My mother had Cancer 3 different times in her life before it took her life in 1993. My father, who I cared for, just passed away from cancer on Good Friday this year. You may remember me from MGH Spinal forums. |
| NAME: | Barbara |
| COMMENT: | Brion,
Your site is wonderful. I can say that it brought more than one tear to my eyes. God Bless you and your family. |
| NAME: | Martha |
| COMMENT: | Congratuations on getting your site open. It is well done and should be helpful to many of us who are going through this difficult journey. |
| NAME: | Cinda |
| COMMENT: | Brion and family -- your story humbles me greatly! My dear husband was diagnosed with EC in July 2001 -- surgery, radiation and chemo. I have had shoulder surgery recently and am now facing back surgery -- but I always thank God that I haven't been given |
| NAME: | Svenska |
| COMMENT: | Hi Brion:
I keep "track" of you on the chronic pain site. I lost my father to cancer and many others I know. I also know several who have beaten it.
You are an amazing person and very much loved. I'm thinking of you in this incredible trying time. |
| NAME: | Neshama |
| COMMENT: | I really think your site is wonderful. Excellent work Brion. I am certain that many people will benefit from your effort.
Take Care!
Neshama (Cervie Spiney) |
| NAME: | Pax |
| COMMENT: | Truly a beautiful web site. This is a god thing for those needing support and info. Blessings. |
| NAME: | Rikke |
| COMMENT: | Hey Brion,
It is amazing that you and your family has the strength to create this homepage - and you should all know that it is a help for all of us who is going through similar situation, although yours is almost unbearable.
I wish you all the best. |
| NAME: | Debi |
| COMMENT: | Thank you Brian, You give me so much hope when my husband Frank was alive and now I still have hope for others. You are a fighter, I also know that my Frank and greg was to. And that is what makes them our heros. Thank you for so much, I still enjoy your updates. |
| NAME: | Rainbowlight |
| COMMENT: | Your website looks wonderful Brion. I am sure you put alot of effort into putting this together. You are a strong person and have a strong wonderful wife. I am praying you will have many long days together. {{{{{Hugs}}}}} |
| NAME: | Brooke Olson |
| COMMENT: | I love you as a friend Brion and Nancy! |
| NAME: | Julie O:) |
| COMMENT: | Hey Brion!!
Excellent job on the web site!! Of course, I knew it would be great all along! Sending love and prayers your way. J. |
| NAME: | Wendi |
| COMMENT: | Your website is a beautiful tribute to your son and a wonderful reminder of what cancer cannot take from us...memories and never ending love. |
| NAME: | Lee Ann |
| COMMENT: | Wow, this is quite complete and well done! Just wanted to say hello to you all. Sorry I didn't get back down to ambulatory to visit with you and Nancy. And sorry to hear of so many health concerns for her. I continue to remember your family in my prayers. |
| NAME: | Connie |
| COMMENT: | Brion,
What a beautiful and loving tribute you have given your son, Greg. You and your family have truely been an inspiration to me! I may never have the chance to meet you and your family here in this life, but I know I will meet you in our Heavenly Home. |
| NAME: | Gina |
| COMMENT: | This is a beautiful tribute to Greg. |
| NAME: | Jennifer |
| COMMENT: | I have been so blessed to know, even in a small way,your family. I cannot express how my heart cries for you. I'm so thankful that you and the rest of your family,including Greg, know Jesus and will all be together again one day. May God bless and keep you. |
| NAME: | Wade and Barbara Gates |
| COMMENT: | Greg and Family,
I feel so privelaged to know yhall in such a personal way. Your e-mails to us mean more than the postings at MGH. We sincerely send our heart felt message to you all.
This has keep me up when I was so depressed from the 12 years of CP. We can't help but feel like we know y'all personally. You all have endured so much I can't even start to imagine.
|
| NAME: | Victoria and Chris |
| COMMENT: | Dear Brion, Nancy and family,
We were very touched to read Greg's story and to see the beautiful site that you have set up as a memorial to him.
Brion, you have a fight ahead for you and our prayers are with you, all the way from Australia. We read your updates. |
| NAME: | Wojt |
| COMMENT: | Hey Brion:
You are a very brave man. Reading your story made me think: it is not a condition or sickness that scares me. Scary is a length and amount of suffering and existence of not competent doctors.
Best wishes for you and your lovely family !
Wojt |
| NAME: | Linda |
| COMMENT: | thank you for the e-mail Brion. I read your web site. Your family is beautiful. My prayers are with you all. |
| NAME: | Connie Mohney |
| COMMENT: | Dear Larson Family, you are in my thoughts everyday but especially on this special day. Happy Birthday dear Greg. You will always be in my heart! Love Connie Mohney---Proud Mom of Shane (www.geocities.com/shanemohney/ |
| NAME: | Darrell |
| COMMENT: | Followed your link from the MGH Forum for the Spineys. I am a new member there. I am almost at a loss for words which is normal since I don't usually say much but this is a very nice site. What a nice way to remember a loved one. |
| NAME: | Chris too |
| COMMENT: | well, brion, it's about time i stopped and went on the record after the times i have been here and all the posting on mgh. just wanted to let you know i keep praying and holding you, Nancy and your family in my thought lovingly. love, Chris too from mgh |
| NAME: | Patti |
| COMMENT: | I was amazed at the strenght seen in this tragic story about your family to read Greg passed away as well was so shocking I am in awe of your display of bravery and love for all ty for allowing us to read this testimony patti |
| NAME: | Dawn |
| COMMENT: | Dear Brion ,and Family,
Im so very sorry for the loss of your son.I hope you find peace within yourselves. You're in my thoughts and prayers. |
| NAME: | xxx |
| COMMENT: | xxx |
| NAME: | xxx |
| COMMENT: | xxx |
